A few updates.
1) ADAMS CAMP - Reese did Adam's Camp for a second time about a month ago. It can be hard for me to see progress, since I am with her every day. But, a therapist who was at the first & second Adam's Camp said that Reese has gotten much more stable and stronger. I do know this is true. She can sit on a chair a little better. She can pull herself up to furniture. She can even get into a small toddler chair (something my brother saw this past weekend when he was visiting and couldn't believe it).
2) SCHOOL/OTHER - Reese coutinues to love school. And they say she is using her walker a lot more at school and even able to keep up with the other kids better than at the begninng of the year. We need to use it more outside of school and at home, but it is challenging for us to use it as much as we should at home for many different reasons, putting the braces on, small spaces, corners, stairs, and just not wanting to do it for 'mom'. But, this is something 'on my list'.
Other things on my list: getting her off her 'bottle' (although complicated, b/c this is where she gets a lot of her nutrition/and she wont drink it from a cup). And of course, toileting is on my list. She is aware of what she is doing, and has peed on the potty, but, the physcial challenges on top of the whole process makes this a little harder.
One more challenge that I am trying to figure out is Reese's peer relationships. Understandably, social relationships can be hard as Reese cannot keep up physically and her speech is delayed. I will try to be patient and work with the other kids and parents, but it is hard to not just want to get angry and sad. We will get through it - but an issue that I hadn't thought about much. aghh..
3) 1st ANNUAL GA1 FUNDRAISER. We had a Fundraiser on Friday night. A friend donated the music venue, and 2 friends offered to play some music and then our friends donated as they pleased at the door. We raised $1800, which will go to the clinic for special children in Lancaster, PA. It was lots of fun!