Sunday, April 3, 2011


MAY 26th - 2ND ANNUAL GA1 FUNDRAISER @ Cervantes - the other side 7 to 12
Donate as you wish - All proceeds go to the clinic for special children. Also, silent auction!


Watch this video on the clinic for special children -

http://www.youtube.com/watch?v=4qAUy6oYH8M

I asked Dr. Strauss (Reese's doctor at the clinic) what their goals are for money raised through fund raising?
Here is his answer:


"
The most important short and long range goal is to build a "Research and Endowment Fund." We do not rely on federal grants here because these do not generally flow to "rare" diseases, and they end up being quite restrictive in scope. Thus, we are trying to build a Fund that will be used to generate annual income from interest (about 4% annually) to support clinical research into rare disorders, especially GA1 and MSUD, the two most common problems we see here the Clinic. For this fund, we are driving to a goal of 5 million dollars over 5 years (1 million per year). The final goal (5 million) would generate about 200K in annual research income, which is about what we need at this time. The short range goal is for "exome sequencing", and new DNA analysis technology that will greatly improve our ability to diagnose genetic disorders and will also give us the ability to study things like "modifying genes" in GA1. We hope to purchase an Ion Torrent "Personal Genome Machine" for this purpose (you can check this out online). F&M College is funding 55K of the total cost, which is 100K, and we are seeking 45K of matching funds from other Clinic supporters".

Go HERE to donate to the Clinic for Special Children online.

Or, make check to: the clinic for special children
and send it to us - and we will send it on.
591 South University Blvd. Denver, CO 80209

THANK YOU! THANK YOU! THANK YOU!