Reese Turnipseed

Friday, September 21, 2012

Reese graduated Kindergarten (last May...but haven't posted in a while)! This is Ms. Maria...one of Reese's amazing aides at Bromwell! Reese had a great school year! Thanks to an incredible program at Bromwell that offers an inclusion program - where she also receives all her therapies as part of her day! Amazing! Reese continues to use her walker, scooter and wheelchair at school in 1ST grade, continues to work on her handwriting - which gets better every day, and loves her friends and teachers! Bromwell is a blessing! And Reese is the same determined little angel who CAN do so many things!!

MORE ABOUT REESE & GA1 -

Reese was the 1st Colorado baby to be caught with ga1 at the expanded newborn screen (NBS took effect July 1, 2006, Reese was born August 2, 2006). In theory, if you catch ga1 at birth, it can be treated through diet and medicine. Unfortunately, because of how rare ga1 is, and how little they know about it, Reese was still 'affected' even though she did not have an apparent 'seizure/crisis' (which is usually the cause of the problems). We treat Reese through a low protein diet, a special formula & medicine. It is also important that Reese (and kids with ga1) go to the hospital when she is sick and is not keeping hydrated. This allows her to get hydrated through IV and get the treatment she needs to prevent any further 'damage'. But, as the affect & damage is to the brain, and the brain is mostly developed by age 2 and 3, kids are not at risk for damage after this age, even though treatment with diet and medicine, continues for the rest of their lives.

Reese Turnipseed

Friday, September 21, 2012

Donate to the Clinic for Special Children

information on glutaric acidemia